FSGS: The journey begins - carnoldphoto
Capital One Volunteer Event

Three months in the hospital including Thanksgiving and Christmas was what we faced and it didn’t seem as though her condition was getting any better. The family came together and the decision was made to transfer her to AI Dupont Nemours Childrens Hospital in Wilmington DE and for the next three months, the doctors and staff worked together to stabilize Saniyah’s condition. It was during this time that you really appreciate the work of so many people and organizations like the Ronald McDonald House and NEPHCURE who help you adjust to your new norm of living with a child who has a major medical condition. Saniyah was named the little princess by the nursing staff of 3 South and has won the hearts of the dialysis team, the playroom staff, and was selected to appear on the cover of the hospital magazine. Each day is a new challenge, but slowly we are making it through it.


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